Groups and Organizations

The below organizations provide information, advocacy, networking, and support resources for TTR Amyloidosis patients and their families.

Patient Groups and Organizations:

• Amyloidosis Foundation
  http://www.amyloidosisresearchfoundation.org/ (United States)
• Amyloidosis Support Groups
  http://www.amyloidosissupport.com/index.html
• Amyloidosis Support Network:
  www.amyloidosis.org (United States - this page includes information in Spanish)
• National Organization for Rare Disorders, Inc. (United States) 
  www.rarediseases.org
• The Rare Disease Community (United States)
  http://nord.clinicahealth.com/index.pl
• Amyloidosis Australia
  http://www.amyloidosisaustralia.org (Australia)
• The Canadian Amyloidosis Support Network, Inc.
  http://www.thecasn.org/ (Canada)
• Tietoa amyloidoosista
  http://koti.welho.com/ssilvone/amyloidoosi.htm (Finland)
• Association Amylose Infos
  http://www.amylose.net/ (France)
• Israeli Amyloidosis
  http://www.amyloidosis.co.il/ (Israel)
• La Società Italiana per l'Amiloidosi
  http://www.amiloidosi.it/ (Italy)
• Groningen Unit for Amyloidosis Research & Development (GUARD)
  http://www.amyloid.nl/ (Netherlands- in English and Dutch)
• Associação Portuguesa de Paramiloidose
  http://www.paramiloidose.com/site.php (Portugal)
• Amyloidose PWAS
  http://www.amyloidose.ch/ (Switzerland)
• National Amyloidosis Centre
  http://www.ucl.ac.uk/medicine/amyloidosis/nac/ (United Kingdom)

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Email Discussion Groups:

• Amyloid chat group on ACOR:
  http://listserv.acor.org/archives/amyloid.html
• Familial Amyloid Group:
  http://health.groups.yahoo.com/group/familialamyloidosis/